Yesterday, George Hook hosted an interesting discussion on Newstalk Radio. His guests were Michelle McKeever, a mother from Northern Ireland, and Terence Cosgrave, a PR professional based in Dublin. Michelle spoke about her son, who was diagnosed with autism at the age of 3. She described how her experience with the Irish Health Services Executive was unsatisfactory, then she talked about a US based group who had helped her. This group is the Family Hope Center.
Following her interview, Hook then spoke to Cosgrave. Cosgrave also talked forcefully about the dysfunction of the HSE. He referred to the Family Hope Center as an option for parents in such circumstances.
I have some questions.
Who are the Family Hope Center? What do they offer? Why was yesterday chosen to come on the programme? And what was a PR consultant doing sitting in on a piece about childhood autism?
Let’s answer the last question first. I looked up Cosgrave’s LinkedIn page. His clients include the Family Hope Center and he has an article from the Wexford People about the Family Hope Center and how they can achieve ‘real, measurable results in children with brain disorders or impairments’. So, there’s that. Cosgrave has a business connection with the Family Hope Center. It would have been good if Hook had mentioned this explicitly on the radio show. Full disclosure, etc.
Who are the Family Hope Center? Well, from their webpage, they offer ‘a practical scientific approach’, striving to ‘educate and help parents promote functional improvement improvement in their children’. Sounds great. They say they can help with a large number of ailments, from ADD to Autism to Down’s Syndrome.
They describe a Scandinavian observational study “Important Real World Evidence of Neurological Development in Disabled Children” the aim of which is to show that their methods are making an improvement with children with moderate or severe learning problems. Given no details about controls, correlations or methods used to avoid bias, no peer review and no submission to any international journals, it’s hard to draw any conclusions from this at all. It’s strange.
They detail big improvements along the WeeFIM scale compared to national results, but it’s unclear how they determined this or whether this was validated by an independent agency. I would love a doctor’s opinion on this in terms of how meaningful these improvements are. They don’t seem to corellate much with the above Scandinavian study.
The Meet Our Team section is also interesting. The director Matthew Newell has years of experience in this field, but I couldn’t find any relevant medical qualifications. The International Academy for Child Brain Development is mentioned, but it appears defunct. Carol Newell has a certification as a nursery nurse, but how this translates into an international lecturer in all phases of development and brain neuroplasticity is unclear.
Kristin Clague Reihman is a certified medical doctor, with a diplomate in Integrative medicine plus training in acupuncture. She also has published material on Facebook promoting Kerri Rivera and her Chlorine Dioxide protocols. This is the MMS bleach product that has hit the news in multiple countries, easily one of the great alt-med scandals of recent years. For a medical doctor to be associated with this in any way is surprising and disappointing, to say the least.
Maybe there’s something I’m missing here, but it seems that the Family Hope Center are somewhat ill-equipped for the challenge of tackling major childhood brain disorders. If, as was said on the George Hook show, they are an option for parents who cannot get satisfaction through conventional approaches, then they have a pretty enormous burden of proof on their shoulders. This is not a burden that website testimonials and “success stories” will adequately address.
And why was Cosgrave on the show yesterday? It wouldn’t be because the Family Hope Center are in Kilkenny over the weekend?
According to some blogs, the costs of these seminars are pretty expensive, so you would need to be sure you are making the right decision and that the evidence is there. From what I have seen, this evidence is thin on the ground. Buyer beware.